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- TERMS OF USE
The Partnership to Fight Chronic Disease (PFCD) is an internationally-recognized organization of patients, providers, community organizations, business and labor groups, and health policy experts committed to raising awareness of the number one cause of death, disability, and rising health care costs: chronic disease Terms of Use Last Updated: February 6, 2026 Partnership to Fight Chronic Disease You agree to receive recurring automated informational text (e.g., SMS and MMS) messages from the Partnership to Fight Chronic Disease, including text messages that may be sent using an automatic telephone dialing system, to the mobile telephone number you provided when signing up or any other number that you designate. All the different types of messages you may receive (Informational messages, vote reminders, shall be known collectively as the "Programs." Consent to receive automated informational text messages is not a condition of any purchase. Cost Msg & Data rates may apply. Please consult with your carrier for rate information. Message Frequency Message frequency will vary. The Partnership to Fight Chronic Disease reserves the right to alter the frequency of messages sent at any time, so as to increase or decrease the total number of sent messages. The Partnership to Fight Chronic Disease also reserves the right to change the phone number from which messages are sent. Not all mobile devices or handsets may be supported and our messages may not be deliverable in all areas. The Partnership to Fight Chronic Disease, its service providers and the mobile carriers supported by the program are not liable for delayed or undelivered messages. Cancellation If you do not wish to continue participating in any Program or no longer agree to these Terms, you agree to text the applicable Short Code (or regular long code phone number where applicable) or directly reply to any mobile message received from a Program with STOP, END, CANCEL, UNSUBSCRIBE, or QUIT in order to opt out of that Program at any time. You may receive an additional mobile message confirming your decision to opt out. You understand and agree that the foregoing options are the only reasonable and exclusive methods of opting out. You also understand and agree that any other method of opting out, including, but not limited to, texting words or phrases other than those set forth above or verbally requesting the Partnership to Fight Chronic Disease to remove you from our list, is not a reasonable means of opting out. You may be subscribed to multiple Programs across different Short Codes or regular long code phone numbers, and therefore you must separately text or reply STOP to each Short Code or long code phone number from which you wish to unsubscribe. Support For support regarding the Program, text “HELP” to the applicable Program’s Short Code or long code, or email us at info@fightchronicdisease.org . Please note that the use of this email address, or texting “HELP” to the Program’s Short or long Code is not an acceptable method of opting out of the program. Opt outs must be submitted in accordance with the procedures set forth above. Our Disclaimer of Warranty The Programs are offered on an "as-is" basis and may not be available in all areas at all times and may not continue to work in the event of product, software, coverage or other changes made by your wireless carrier. We will not be liable for any delays or failures in the receipt of any mobile messages connected with any Program. Delivery of mobile messages is subject to effective transmission from your wireless service provider/network operator and is outside of our control. We are not liable for delayed or undelivered mobile messages. Privacy Policy We respect your privacy. We will only use information you provide to transmit your mobile messages and respond to you, if necessary. This includes sharing information with our program partners, message content providers, phone companies, and vendors who assist us in the delivery of mobile messages. EXCEPT AS SET FORTH IN THIS SECTION, WE DO NOT SELL, RENT, LOAN, TRADE, LEASE OR OTHERWISE TRANSFER FOR PROFIT ANY PHONE NUMBERS OR CUSTOMER INFORMATION COLLECTED THROUGH PROGRAMS TO ANY THIRD PARTY. Nonetheless, we reserve the right at all times to disclose any information as necessary to satisfy any law, regulation or governmental request, to avoid liability, or to protect our rights or property. When you complete forms online or otherwise provide us information in connection with a Program, you agree to provide accurate, complete, and true information. You agree not to use a false or misleading name or a name that you are not authorized to use. If in our sole discretion, we believe that any such information is untrue, inaccurate, or incomplete, or you have opted into a Program for an ulterior purpose, we may refuse you access to the Program and pursue any appropriate legal remedies. This Privacy Policy and Terms and Conditions is strictly limited to these Programs and has no effect on any other privacy policy(ies) that may govern the relationship between you and us in other contexts.
- Sign-on Letter re Alzheimer's
The Partnership to Fight Chronic Disease (PFCD) is an internationally-recognized organization of patients, providers, community organizations, business and labor groups, and health policy experts committed to raising awareness of the number one cause of death, disability, and rising health care costs: chronic disease Resources RESOURCES > SUPPORT FOR THE ENSURING PATHWAYS TO INNOVATIVE CURES (EPIC) ACT > SIGN-ON LETTER TO CONGRESS RE. CMS NCD WITH CED FOR ALZHEIMER'S TREATMENTS Sign on Letter to Congress re: CMS NCD with CED for Alzheimer's treatments The Partnership to Fight Chronic Disease (PFCD) and several of our partners are working together to raise awareness and call for reconsideration of the Centers for Medicare and Medicaid Services (CMS) National Coverage Determination with Coverage with Evidence Development for an entire class of new, FDA-approved treatments for Alzheimer's Disease. This decision has ripple effects beyond just the Alzheimer's community and sets a dangerous precedent for other people living with chronic conditions. We have drafted a SIGN ON LETTER and welcome organizations to join us in calling on Congress to take action in requesting CMS to reverse this decision that compromises patients, families, caregivers and providers managing this progressive, debilitating disease. Name Organization Title Email Address Submit Thank you. Your message has been sent.
- Support for the Ensuring Pathways to Innovative Cures (EPIC) Act | Partnership to Fight Chronic Disease
The Partnership to Fight Chronic Disease (PFCD) is an internationally-recognized organization of patients, providers, community organizations, business and labor groups, and health policy experts committed to raising awareness of the number one cause of death, disability, and rising health care costs: chronic disease Resources RESOURCES > FEWER TREATMENTS RESULTING FROM IRA PRICE CONTROLS Fewer Treatments Resulting from IRA Price Controls WEBINAR Lumanity's IRA Webinar Series - Part 2: IRA Impact on Innovation in Drug Development November 12, 2024 PRESS RELEASE Case studies highlight peril to treatment advances across several disease states FACT SHEET Anticoagulants FACT SHEET Autoimmune Diseases FACT SHEET Diabetes FACT SHEET Mental Illness FACT SHEET Rare Cancers
Blog Posts (51)
- Progress Takes Many Forms When It Comes to Fighting Chronic Conditions Like Alzheimer’s Disease
April 17, 2026 (Washington, D.C.) The Partnership to Fight Chronic Disease (PFCD) released the following statement today in response to recent analyses related to Alzheimer’s disease. “The recent review of anti-amyloid Alzheimer’s therapies highlights the complexity of measuring progress against a devastating disease, but its conclusions should be viewed with important context. By combining older, unsuccessful therapies with newer treatments that have demonstrated the ability to slow cognitive decline, the analysis risks misrepresenting meaningful advances and diminishing what these medicines can offer patients and families today. “For those living with Alzheimer’s and related dementias, even modest slowing of disease progression, such as the reductions in decline observed in recent trials, can translate into more time with loved ones, greater independence, and a critical window for future breakthroughs. Dismissing these gains because they are not cures overlooks what matters most to patients and caregivers. “At a time when the burden of Alzheimer’s continues to grow, the answer is not to step back from innovation, but to build on it, advancing a range of scientific approaches, improving how we measure meaningful outcomes, and ensuring patients have access to emerging therapies. The Partnership to Fight Chronic Disease remains committed to supporting continued research, thoughtful evaluation of evidence, and policies that accelerate progress for the millions of Americans affected by this disease.” ###
- New Analysis: Patients Paid the Price When Europe Controlled Drug Costs
Patients lose access to lifesaving therapies when governments impose drug price controls, and the consequences are measured in delayed treatment, depleted research pipelines and lives cut short, according to a new research analysis from the Information Technology and Innovation Foundation (ITIF). ITIF examined how European drug pricing policies drove the continent's fall from global biopharmaceutical leadership. While compiling and assessing existing research on the patient impact, the independent think tank called Europe a "cautionary tale" for the U.S., particularly as the Trump administration continues to champion the expansion of price controls through “Most Favored Nation” (MFN) drug pricing policies. Patient wait times for treatment availability, as measured from regulatory approval to payer coverage, were slower in 25 of the 27 EU nations compared to the U.S. from 2014 to 2022, according to IQVIA. The Galen Institute found that, of 290 new medicines introduced globally between 2011 and 2018, 89% were available in the U.S. compared with only 62% in Germany, 48% in France and Switzerland, and 40% in Ireland. The data were starker for oncology medicines: 96% were available to American patients compared with 73% in Germany, 66% in France, 62% in Switzerland and 51% in Ireland. The report also traced the erosion of the pipelines that deliver patients new therapies. Between 1960 and 1965, European firms produced 65% of all new medicines worldwide. By 2004, that share collapsed to 18% while the U.S. share climbed to 62%. ITIF cited research by University of Southern California health economist Darius Lakdawalla and his colleagues, who found that lowering U.S. drug prices to European levels would reduce life expectancy for adults ages 55 to 59 by roughly two-tenths of a year. That amounts to more than four million life-years lost across that age group alone. For the more than 194 million Americans living with multiple chronic conditions, the analysis of Europe's decline hits close to home. These patients depend on a steady flow of new therapies to manage illness, preserve quality of life and survive. As a recent Partnership to Fight Chronic Disease study explored, chronic conditions are the primary driver of rising health care spending across Medicare, Medicaid and private insurance, and obesity is a primary culprit. Adding longer wait times for new treatments to an already strained U.S. health care system would delay care, worsen patient outcomes and drive costs higher. The risk is too great. Ultimately, ITIF's analysis is a patient story. Europe's experience shows what happens when governments suppress the returns that fuel innovation. Americans with chronic disease cannot afford for history to be repeated. The full report from ITIF can be found HERE .
- New Case Study Highlights the Risk of Severe Treatment Delays for U.S. Patients Fighting Cancer Due to MFN
For millions of Americans living with cancer, access to innovative treatments is urgent and often lifesaving. The U.S. has long led the world in developing cutting-edge therapies, giving patients earlier access to new medicines and contributing to improved survival rates and quality of life. With 345 cancer medicines launched over a twelve-year span compared to just 191 in the U.K., a difference that translates directly into more treatment options and better outcomes for patients, it is clear that preserving that leadership must remain a top priority for policymakers. A new case study demonstrates how patients with cancer in the U.K. have waited years, sometimes more than a decade, for access to a blood cancer medicine that is widely available in the U.S. This stark contrast highlights how price control policies, such as the Trump administration’s Most Favored Nation (MFN) proposals, which would tie U.S. drug prices to those set by foreign governments, risk undermining the very system that facilitates robust access to the latest treatments available to Americans today. Countries that rely on government-mandated price setting, like the U.K., utilize cost-effectiveness frameworks, such as the quality-adjusted life year (QALY), that systematically serve to delay or deny access to treatments by an arbitrary, and arguably unethical, measure. In this new series of case studies, the Partnership to Fight Chronic Disease will demonstrate how importing such pricing frameworks into the U.S. risks importing those same barriers for American patients and families navigating complex diagnoses. For people living with cancer and other chronic conditions, delays in access and fewer treatment options can have a devastating impact. Learn more about the unintended consequences of MFN at fightchronicdisease.org/MFN .

