resources

9/13/24 Sign-on Letter to Congress   Infographic: EPIC Act Needed to Protect Access to Medications for People Living with Chronic Conditions    Webinar: Preserving Incentives for Development...
Case studies highlight peril to treatment advances across several disease states   August 14, 2024 (WASHINGTON, DC) The Partnership to Fight Chronic Disease (PFCD) today announced the release of a new data set...
  Press Statement - New Insurer Perspectives Highlight Considerable Patient Challenges Anticipated from Prescription Drug Affordability Boards White Paper - Health Plans Predict:...
Patients, people with disabilities, and their caregivers want their experiences and outcomes that matter to them to be considered when the government or other payers make decisions about their treatments. The Inflation...
INFOGRAPHIC - Leaving Medicare Beneficiaries in Limbo   INFOGRAPHIC - The Long Road to Treatment: Medicare's CED Clinical Trial Policy    INFOGRAPHIC - Patient Registries...
Neurodegenerative disease arises when nerve cells in the brain or other parts of the nervous system lose function and eventually die. Currently available treatments may relieve some of the associated symptoms, but there...
To anticipate and prepare for future pandemics, the United States needs to develop an effective National Pandemic Preparedness Strategy (NPPS) focused not only on the infectious pathogen, but also resulting,...
States seek to limit coverage of drugs approved through the FDA’s accelerated approval pathway designed to accelerate availability of medications that treat serious or life-threatening conditions...